The docs say she is doing well though to look at her it doesn't seem much has changed. She is still "puffy" which is an understatement unless you consider the Michelin Man to be retaining a bit of water. The doctors keep telling us that she needs to "mobilize fluids" as though she has a little military command post inside her. "All right men, we need to mobilize. Yellow squadron, go through the kidney. Green squad, out the nose. We'll see you all on the outside. Now, move, move, move." If that is in fact the scenario, I'd like the commander to stop smoking stogies in the officers' tent and mobilize the forces NOW. As of last count, she is 4 liters to the positive. Meaning 4 liters more fluid has gone in than has come out. She's making some progress since they've put her on a regular schedule of diuretics.
She is still on the ventilator though they have lowered some of the settings to begin weaning her off. She takes breaths on her own between the breaths forced on her through the tube. It'll be at least a few more days until they consider removing her from the ventilator completely. Although she's still sedated, she does kick her feet and wiggle her fingers...particularly when they're doing something she doesn't like. She's still in there making her wishes known!
This hospital stay is strange since we're just sitting around willing her to get better. We're keeping busy between video games (Jeff), the daily Jumble (Jeff), books (Lori) and making blankets (Lori). We keep a steady flow of her favorite songs playing to drown out the beeps and hums of the hospital equipment. Since she is "schnockered" (again, their term, not mine), we are able to tag team as well. While one of us stays bedside, the other can run home and do laundry or grab some necessities (aka - outside food).
A huge THANK YOU to Beth for the yummy brownies and Katie for the delicious soup, rolls and warm blanket. We're not very good "receivers" and are terrible "askers" but we appreciate your unexpected thoughtfulness. And thank you to the docs, nurses and staffers from the other departments who stop by to check in on us. Always the gracious host, Jeff considered hosting a pizza and beer party last night to accommodate the surge of kindhearted hospital personnel. I told him he's likely the first person to consider bringing beer to the PICU.
Anyhoo, that's all for now. I'll update again when she's off the ventilator. Shouldn't be too much longer!!!!!
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8 comments:
Hi baby Lilly!
I've never met you, however I hear you are just as cute as a button. I'm Grady boys babysitter and I just want to let you know that my family and I are pullin' for ya! I know the Newsom's are thinkin about you everyday, we all are. Love ya kiddo!
-Wynter Hite
I am glad to hear that Lillian is improving. It is hard to hear that someone in the family is down and out. I was happy to read that she is breathing somewhat on her own. She is the biggest little fighter i know. Our prayers are always with you.
Love Joey and family.
Thank you for the news, I am relieved to hear things are looking up. It must feel like a lifetime in the joint, but you have done everything Lillian needs to heal on her time...great work. Keep it up, the finish line is ahead!!
Any cravings up there? How's that hospital food tastin' about now? What can I bring up that you miss?
Let me know, or I will make it up.
Good news today! Let's have some more!
Love,
Katie and Grady
We are so glad to hear things are on the upswing - and that people are bringing you food -
let us know if you need anything!
Garren & Chris
Lilly -
lets hope you are off the ventilator soon! keep fighting and know that there are lots of people out here thinking about you.
Bruce
Boy, oh boy...what an experience this is! Just when you think she's done everything she needs to do to fight the chemo, we now have to ask our favorite little 2 yr old neice to "mobilize her fluids". Good heavens...she's a fighter through and through...as are you and Jeff. I am so glad that you have such a wonderful support system and wish I could meet and thank Katie (in person)for bringing my lil' sis some home cookin'. I'm sure just the human connection and contact from the outside world means so much. Hang in there guys...we are sooo pulling for Lillian to mobilize the troops quickly and move outta there! For all your sleepin' and eatin' sakes! We love you all.
Traci
Hey Harris Family,
Sorry I didn't get a chance to say hi today, Grady had low counts so off to lock down we went. We love your updates, and are hearing good things from the nurses up there, I hope it is all true and Miss Lillian is working to get better everyday!! She is in our prayers daily!
Christina hopes you like the special painting she made for you, she says to tell Lillian, "Hope your heart is filled with joy by that painting".
You must be so tired, I am really feelin' for ya, hang in there.
Lots of love and good thoughts,
Katie
You are in my thoughts and prayers. You have strength that awes me. ((((((HUG)))))) for all of you!!!
XOXOXO
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