Here are some of our upcoming battles:
- Her last stem cell transplant (another milestone) is on Friday after which we will head home.
- Now that she has completed the cycle of antibiotics, the neurosurgeons are monitoring her shunt and plan to tap the fluid on Friday to test for any "bad guys" (their words, not mine). So far so good!
- In the coming weeks, her counts will plummet and rise again along with her comfort level.
- A hearing test followed by adjusting to life with hearing aids.
- Though we have yet to make the final decision along with her oncologist and radiation oncologist, she will likely undergo 6 weeks of daily focused radiation on the tumor bed.
- Physical therapy, physical therapy and more physical therapy (aka play, play and more play). We can't wait to see our little girl stand on her own two feet and walk.
- She will get her first of quarterly craniospinal MRI's the first week in March.
But enough looking ahead, join us in relishing this amazing milestone as Lillian beats the odds and wins the war against cancer.
7 comments:
Lori,
I am so thrilled for you guys. Please give Lillian a HUGE hug for us. Praise God for what an amazing fighter your little one is and I hope you know how amazed we all are by you and Jeff. You have modeled what it means to be loving, self-less parents. Thank you for allowing us to be a part of this journey through your blog.
Love,
Jenn
YEAH!!!! We are all cheering for you!!! Hope that you guys can get some rest coming up and maybe relax a little!!
Give each other a great big hug for us.
Jennifer, Sean & Brieana
I;m so happy to hear that this part is over. We will continue to pray for Lillian and both you and Jeff as well. Keep up the good work. You are an inspiration as parents!
Joey, Josh, Zack and Jacob
Lori, Jeff and Lilly,
What beautiful words,"Done with Chemo"! As each new milestone comes up I wish you just enough strength, patience, optimism and humor to carry you all through. May your days at home be filled with rest. Liz G.
A huge milestone has been reached! Congratulations Lori, Jeff, and Lilly! I know the hard work is not over but you are well on your way to recovery. I continue to keep you in my thoughts and prayers. I love the pictures of Lilly included in the blog. Jean M.
Yea! We look forward to more Good News.!!!!!!!!!!
M.Harbour
Lori, Jeff and Lillian,
You three are the bravest fighters...you all continue to be in my thoughts and prayers.
Lori, I've known you since the day you were born...and you have always had a special way about you. (Remember the stories of you being determined not to go to sleep at my house...and determined to try out all the peaches in my box of peaches?)We now know that no matter what you face, you continue to be determined...We love you, and love the woman and mother you have become. Few of us could give like you do...hang in there. With love, Claudia
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