After a busy 2 days of clinic appointments, we are finally ready for the last round of chemo. We plan to enjoy 3 consecutive days free from any medical-related appointments. We even managed to get out of the house a couple of times today! One stroller ride around the neighborhood and a second wagon ride through the local nature preserve. At the nature preserve, Lillian was able to do one of her favorite activities - throwing rocks in the river. (It's the simple things, right?) Though lugging around the two packs of pumps and iv fluids makes outings tedious, we're forging ahead anyway.Though we know her treatment is not over, I thought I'd take a moment to mention all of the wonderful people at Doernbecher's who have made this ordeal more tolerable over the last few months:
- Not all nurses are created equal. Anyone who has stayed overnight in a hospital can attest to the fact that night nurses in particular can make or break your stay. So to all the night nurses who set their watches to turn off alarms before they sound, we thank you!
- As you can imagine, there have been many moments where Lillian is just DONE with all of this "stuff". During those times, even our best tricks don't soothe her. To all of the kind souls who pass us sympathetic glances or murmur an understanding word, we thank you.
- There are countless teams of talented people who have contributed to Lillian's quality of life and health care. Often the m.d.'s take center stage causing the other teams to be overlooked. To the physical therapists, occupational therapists, speech therapists, audiologists, nutritionists and CNA's, we thank you.
- Finally to Kim in the PICU, Kathy the CNA, Kristi the Audiologist, Heather the Audiologist, Shana the Physical Therapist, Laurie the NP in Neurosurgery, thank you for taking a special interest in Lillian.
And to all of our friends and family who continue to support us, THANK YOU! The journey is far from over but I can't say enough how much your prayers, cards, calls and blog comments mean to us.
Cheers to a long weekend and to the sixth and final round of chemo!
8 comments:
What a great day to spend with wagon rides and throwing rocks in the river! I am so glad you guys were able to get out and enjoy the sunshine today. I love the newest photo of my favorite little girl! Cheers to a smooth and speedy round six! Love, Michelle
I'm thrilled that this last chemo treatment is finally here and therefore almost over. Won't it be great when our happy, cheerful little rock-thrower will be feeling better and better with nothing ahead but blue skies, wagon rides and fishing boats! Yeah! Love, Nana
Sounds delightful taking a wagon ride and throwing rocks! She looks all the part of the champ with her stuffed animal! Wishing you all the best with Round Six! Love Abra and Chip
I am so glad to hear you are all at home and doing well. I am also glad I didn't see you in the halls today as I was working inpatient! Joshua and I loved the picture for today! He wanted to go through and see all of Lillian's pictures, over and over again. Good luck with the FINAL round of chemo! Hopefully you will all be well and home again by the time I get back to work on Thursday or Friday! Enjoy your day home tomorrow with some rainy day activities! Love, Beth & family
Love that picture! What a cutie. Best of luck in the last round, I hope it goes quick!
M. Harbour
We are praying that everything goes so smoothly. How exciting to be looking at your last round of chemo!! Love the picture this time. She just glows. The boys love throwing rocks, too. When you're up for it, we should get together for rock throwing and jamba juice!
Love you guys,
Jenn & Kevin
Lori,Jeff and Lilly,
What joy to read that you are going to be on your last chemo treatment. Three cheers for two very devoted parents and a whole chorus of cheers for your little Lilly. Liz G.
You forgot about two people to thank. Lillians loving supportive and extordinarally strong parents. Who through it all kept smiles and good times in a little girls life that would have otherwise been miserable. I belive I can speak for everyone when I say thank you Lori and Jeff for being the heroes that you are. We love you and cheers to the sixth round!!!!Maire and Family
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