Our Super Girl has done it again! Her counts in all areas are remarkable. So we can proceed with chemotherapy as planned.
But (yes, there is a but), we need to wait until Friday to begin. The next 3 rounds of chemo are more aggressive and will require transplants of her previously collected stem cells to aid her recovery. Since they only do stem cell transplants on weekdays, her chemo needs to begin on a Monday, Tuesday or Friday. That will allow for 2 days of chemo and one day of rest prior to the transplant.
The other fun fact about one of the new chemo drugs is that it secretes through her skin. That means that she will need a bath every 12 hours. Prior to her diagnosis, a bath twice a day wouldn't have been a big deal. But now a bath will produce a guaranteed tantrum. Since her central line and it's surrounding dressing cannot get wet, we have to apply a plastic patch over a majority of her chest that gets taped down. That's enough to make anyone hate baths!
Praise God for giving Lillian such super healing powers and pray that she endures this new life-saving cocktail with ease.
14 comments:
She really is a Super Girl!!! I am so glad that you guys got to keep on schedule thanks to Miss Lillian's great counts. Here's hoping for a smooth stay at the Pokey. Michelle
Lori,
I remember when Grant had his broken arm and we had to put a bread bag or an Oregonian bag over his whole arm and tighten it down with a hair tie for baths. He hated it! I hope and pray that Lillian goes easy on you and Jeff as you wrap her up for baths. I know it's no fun. :(
Always in my thoughts and prayers,
Amber K.
Yippee for Lillian! We'll be praying that everything goes smoothly and bathtime gets easier.
Jenn
Lillian, You Go Girl! Lori that is wonderful news! I hope this next round goes smooth and that you all stay strong in the coming weeks! We are always thinking of you.
XXX Abra and Chip
Lori,
just getting back to work and getting caught up on everything with Lillian. Last Friday, I cut off 12 inches of my hair to donate to Locks for Love in honor of Lillian. You and your family are constantly in my positive thoughts. Way to go Super Girl, keep up the great strength! I am thinking all the best for you!
Melissa H.
Yippeee!!!! I'm so glad to hear that she is a super girl..although we've already known that, right!?! Friday sounds good...a couple extra days at home to rest up and gear up! We're hoping these more aggressive rounds of chemo go as smoothly as the first rounds! She really is a trooper! Traci
I see a new comic series with Super Girl as the new SUPER HERO with amazing super healing powers!
In all our prayers!!!
Sorry I missed you all on Tuesday!! I am sure we will run into each other at some point :) Good luck Friday with the next round!! We are so proud of the Super Girl & her wonderful sidekicks. We will definately be praying for the next round of chemo and of course for bath time. Baths can be hard enough as it is let alone having a slippery wet super hero toddler throwing a tantrum! Those super powers make her harder to control :) Say hello to Ched (hopefully it will be a short visit this time)-- If it makes you feel any better the Cheds at Doernbecher are 10x more comfortable than the Cheds at Good Sam! Take care. Beth & Family
Lori,
It sounds like you all still have the ups and downs. It seems like more ups as of late though. I loved seeing the updated pics of Lillian, she looks beautiful and continues to amaze me with her strength in each blog I read.... as do you and Jeff! I miss seeing you and think of you all often. I hope to catch you sometime soon :)
Love.
Amber
Yeah!!! That is so great to hear. I will be praying for Lillian as she begins her next round tomarrow, as well as for you and Jeff throughout this time.
By the way, I love reading the blogs, so keep them coming.
Tiffany S.
HI Lilian,
I found this blog accidently.
My son was too diagnosed with medulablastoma last July 06. He is doing good now Praise the Lord.
He has done radio and now He is in the middle of chemo. I made my son to drink plenty of water during the cisplastin.The doc said, it helps, also I stop the milk because it irritates my son stomach lining cause by chemo. I will too pray for your dauhgter. She will be fine.
We are in Montreal Canada.
All of the Colburn's are hoping and praying for Super Girl's smooth recovery.
Good Luck in the new year. We are all praying for you and Jeff and of course Lillian. I know you probably get alot of suggestions for bath time, but heres on more...if you can find them, try tablets that change the bath water different colors, my kids love it!
love and prayers, Joey
hello harris family. Happy to here you had a good holidays.She is a fighter always has been. keep up the good work Lillian we all love you and keep you in our thoughts every hour of every day!!!! Maura, Chad and Bryson
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