The first half of last week was the lowest point we've seen in Lillian's treatment. She wasn't eating. She wasn't sleeping. She wasn't playing. We were pretty certain that her appointment on Tuesday would involve blood and platelet transfusions. And we were hopeful that as in the past, those transfusions would help her feel better instantly. So imagine our distress when we awoke Tuesday morning to see the snow falling. God truly put His arms around us and guided us safely to the hospital despite the treacherous conditions. That's what I call "divine transportation." Roads we travelled on were closed shortly after we passed by. It took our doctor 3 1/2 hours to travel the 12 miles she lives from the hospital. The news was filled with images of cars helplessly sliding into each other. But we travelled effortlessly...and we made it to our appointment on time.
Though she didn't perk up right away, after a total of 3 platelet transfusions and 1 blood transfusion in 7 days, she is feeling better. But the experience of spending 5 days doing nothing but watching cartoons and sleeping has left an indelible impression. For example, when she was finally up to taking a blanket ride and wanted me to pull her faster, she shouted "accelerando" (a line from Little Einsteins). Oh well, too much tv is just one of many bad habits we'll need to work on after her treatment ends. For now, everything is free game.
We have three uninterrupted days at home this week to get her fattened up and feeling stronger while her counts are good. On Friday, she will have a kidney test again. On Monday she has a hearing test, a doctor appointment and will then be admitted for her 5th round of chemotherapy. It's funny how something can fly by so quickly and yet seem so slow at the same time.
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5 comments:
It was unbelievable that you and the necessary hospital staff were able to make it into the clinic last week. The news reports were amazing to watch. We were all relieved to hear that you all were back at home! Hope the corn chowder and monster cookies are working to bulk her up! She "needs more power" (again from the Little Einsteins). We're thinking about you guys a lot! Traci
wow - divine transportation indeed! And I can testify how bad the roads were that day - especially up in our neck of the woods.
Glad to hear she is feeling better!
Garren
I'm so glad you guys got to the clinic safely! God really is such an amazing provider.
Don't feel too badly about too much tv. I'm sure that once her energy is up, the last thing she'll want to do is sit in front of the TV. We'd love to get together to play when she's ready for it. The boys have been praying for all of you every day and are looking forward to meeting Lillian.
Jenn
We are still out here and we are still praying for all of you. WOW, treatment #5! You are way past the half way mark! Stay strong as we know you will. The blanket rides look like fun! When it snows next winter, Lillian will be on a sled sliding down a hill!!! The blanket rides are good practice!
Take care of yourselves, Paula
What a trip to the hospital it must have been! We think of you often and keep Lilly in our prayers.Thankfully Lilly won't remember any of this later. Now you are trying to bulk Lilly up; 30 years from now, she will be fighting bulk. Life is never fair. Thanks for keeping us updated on Lilly's progress. The McSwain's
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